So, what’s happening today? Rhys was having some bruising on his side which was cause for concern about his platelettes. He’s since had a blood test which has shown there is no cause for concern in that realm. The hole in his lung has healed completely. The chest tube is being left in for a few days just to be safe. He is receiving a blood transfusion for a low blood count, and will be undergoing photo treatment soon. He’s responding well to stimuli and has a great color. He has had another lung treatment to which he responded well. Most importantly, his brain scan has come back showing no bleeds in the brain. Yay!!!

Leilani is in good shape all things considered. She has had more lung treatments to which she is responding well. Doc says she is on her fourth treatment! Fourth!? I thought this was number two! Gonna have to talk to the doc. :) The hole in her lung has not healed yet, but these things take time. She had a heartscan today, and the nurse said she heard the doc talking about a heart murmur. We’re not too happy about that, but we understand this is quite a common thing. Leilani will be having a blood transfusion and will be undergoing the photo treatment as well. Basically, they get meds infused, and then they are put under a special lamp. This is done to help heal a hole in the heart. Some kids have it, some do not. If left untreated, this could cause bleeding in the brain. Lastly, and best of all, Leilani’s brain scan came back negative for bleeds.

They are both doing much better than I had expected initially. I’m very hopeful, and I can’t wait until we can take them home. They are my life, and my inspiration. I can’t imagine a world without them. Thanks to everyone for praying for us, and for lending us your emotional support. It has meant so much to us. Undoubtedly, this is a large part of the reason we are doing so well, and that our kids are doing well. Thank you. It’s truly unbelieveable.

I caught a picture of Leilani with her eyes open. Click here to check it out!

Rhys

Leilani