Merry Christmas!
by Slack, on December 25th, 2004
MERRY CHRISTMAS, everyone! :) I hope everyone is having a wonderful time. Things are pretty well here We started the day with some yummy Circle K coffee, and dove into the presents. :) We’re both very happy with what we got. Anyway, the big news today is Rhys made it to page 1 in the paper! How cool is that! There’s a huge picture of him printed in color! Love it!
Click on the “read more” link to check it out, or check the original article at The Daily Star…
Have a good one!
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Grieving one child, celebrating another
By Carla McClain
ARIZONA DAILY STAR
There was no Christmas last year. Not a hint of it. This year, there is a tiny tree, for the one tiny life that made it.
Born as far from a manger as a baby can get, the twins - Rhys and Leilani - came into a world of bright lights and beeping machines, of tubes and monitors and medicines.
Due in the early spring, the babies instead arrived in the dead of winter, just days before last Christmas. Weighing only 2 pounds each, they began a harrowing year, a terrible struggle to live.
It was a fight one of them lost. But even so, there will be a celebration of life today.
“This is a very hard mixture of emotions - it’s surreal to grieve for one child and celebrate the other,” said Heidi Trevethan, 28, the twins’ mother. “We tried so hard to have these babies. These babies were so wanted, so needed. This Christmas is very bittersweet.
“I miss my daughter - my son is not supposed to be alone,” she said. “But my son is here, and that he is, is a miracle. He is so cherished. He helps me heal.”
When something went wrong with one of the placentas that supplied blood and oxygen to Rhys and Leilani in the womb, they were born Dec. 19 at Tucson Medical Center after only 26 weeks of pregnancy. “Extreme prematurity,” doctors call it.
With lungs unready for the real world, they were immediately put in newborn intensive care, on breathing machines.
The machines are unkind and uncomfortable, especially for extraordinarily fragile babies who wanted nothing more than the peace and quiet and safety of their mother’s body.
“It was too early for them to come out. I couldn’t even touch them, they were so very fragile,” Heidi said. “The stimulation of doing that was too much for them. Any movement at all destabilized them.”
Within two days, Rhys crashed. He stopped breathing, and went without oxygen for a dangerous stretch of minutes. After a heroic effort, and every medical technology available, he was resuscitated - but not before he suffered a severe brain bleed. No one yet knows the damage it may have caused.
In the days that followed, there were lung punctures from ventilators, infections, blood transfusions, tubes and drugs that caused seizures. The twins lost weight. Although Rhys at times seemed nearer death, Leilani began to decline.
“She had so many infections - she just had no immune system. She couldn’t fight off anything,” her mother said.
“I got to hold her the first and only time three days before she died. She actually opened her eyes - it was awesome.”
Leilani died Jan. 7 - less than three weeks after birth.
Rhys continued to fight on.
And in March - around the time he should have been born - he finally went home with his parents, Heidi and Allen.
He no longer needed oxygen, though doctors had predicted he would depend on it for at least two years. His mother could hold him, for hours at a time. He had made it to 5 pounds.
But Rhys remembers, it seems, how hard it was.
“He hated all the tubes. To this day, he doesn’t like to have his face touched. He’s a very serious little boy,” Heidi said. Rhys does not walk, nor even crawl yet, but he is reaching milestone after milestone of development, if a bit late. He has thrived in physical, occupational and speech therapy.
“They told us it was possible he could be totally incapacitated. But he has made huge strides - he’s exceeding every expectation,” Heidi said.
“In my heart of hearts, I think he is going to be OK. There’s a real spark there - you can see it in his eyes. He’s strong.”